FATIGUE MANAGEMENT
DOWNLOADABLE
INFORMATION
SPECIFIC
MANAGEMENT OF MS RELATED FATIGUE
Managing Fatigue in MS
http://www.nationalmssociety.org/keepsmyelin/resources/adobe/Issue-12.pdf
Energy Saving Tools for MS
http://www.nationalmssociety.org/keepsmyelin/resources/adobe/Issue-6.pdf
National MS Society Fatigue Management Guidelines
http://www.nationalmssociety.org/Brochures-FatigueMain.asp
Fatigue in MS: Current Understanding and
Future Directions
http://www.mult-sclerosis.org/news/Jul2002/JRRD6FatigueInMS.html
Villamartelli Recommendations: Improved
Fatigue Management (Included in this handout)
http://villamartelli.com/P_FatigueMgmt.htm
SOME ASSISTIVE DEVICES AND ENERGY SAVING
TOOLS
ABLEDATA
Information on assistive technology and rehabilitation equipment.
www.abledata.com
Disabled Online
Resources for the disabled community and their families and friends, including
news stories, message boards, disabled topics and chat rooms
www.disabledonline.com
The Home
Wheelchair Ramp Project
Manual of design and construction for modular wheelchair ramps
www.wheelchairramp.org
Project Link
"Your connection to assistive devices."
www.phhp.ufl.edu/ot/projectlink
Villamartelli Links: Accessibility/ Assistive Devices
RECOMMENDATIONS FOR IMPROVED FATIGUE MANAGEMENT
Michael F. Martelli, PhD:
mfm.villamartelli@gmail.com
Specific Habit Training Should Include the Following
General Goal Directed Strategic Interventions:
„
Pacing (as a general relaxation
procedure and a pain prophylactic), including enhanced discrimination and
proactive management of fatigue via segmenting activities into steps and taking
frequent brief relaxation breaks.
„
Energy Conservation Strategies that emphasize
early discrimination of fatigue (e.g.,
irritability, frustration, decreasing strength, speed or endurance,
decreased cognitive efficiency), modifying activity and schedule to promote rest
breaks before fatigue progresses, with gradual increases in length of
activities to maximize energy level and peak performance on functional
activities and vocational or educational pursuits.
„
Task Analyses and other Organization
Strategies that not only enhance automatic performance, but significantly
decrease energy requirements for task performance. Task Analysis involve
breaking tasks into single, logically sequenced steps and recording the steps
in a Checklist that can be followed and checked off as completed. Task analyses
always make task initiation, completion and follow through easier. They also
greatly improve ability to perform tasks in persons with limitations in energy,
initiative, ability to sustain performance, memory, organization, etc. Task Analyses/ Checklists are extremely
useful in minimizing fatigue by reducing the demand for, and fatigue produced
by reasoning and problem solving associated with planning, organizing. Most importantly, with repeated completion,
they allow retraining of efficiency habits.
„
Time Management Strategies
Medical Psychology
& Rehabilitation Neuropsychology Service
Chronic
Progressive Disorders
Developmental
and Reactive Stresses
‰ Generalized
Declines in Control and Coping Resources
w
Declines
in Physical Ability
w
Declines
in Activity
w
Declining
w
Decreased
Self-Esteem and Self-Confidence and Sense of Purpose secondary to decreased
involvement in activities & pursuits that allow fulfillment of needs to
feel useful, productive & worthwhile
w
Declining
Friends and Social Outlets and enjoyments
w
Decreases
in Cognitive Abilities
w
Declining
Energy & Endurance / Increasing Fatigue
Developmental
Factors that Increase Functional Decline
w
Fatigue
related decreases in physical, cognitive, emotional & social functioning
w
Cognitive
& Social Understimulation related increases in cognitive deficits, rustiness, atrophy, depression,
etc.
w
Depression
related reductions in physical, cognitive & social functioning, and
motivation
w
Misunderstanding
of symptoms by others (e.g., laziness, selective memory, manipulation, etc.)
w
Beating-up
on Self (Guilt, Frustration, Anger --> SelfAbuse)
w
Learned
Helplessness (i.e., difficulty making continued effort given past
failures/expectation of future failures / belief that efforts will not work /
over-reliance on others & external help)
Interventions
For primary problems of Decreased Initiation/Endurance/Energy
(i.e.,
fatigue), Decreased Physical Capacity, Depression, Declines in Cognition and
Problem Solving, and Social Isolation
‰ Use Compensatory Strategies as
Equalizers:
Patience, Persistence, Coaxing and
Self-Cuing of memories and efforts (promotes exercise & adaptation vs
atrophy); successive approximations
Self Pacing & Activity Planning
to control fatigue
(see self-control procedures)
w
Internal
& External Attention, Memory & Organization Strategies (see cognitive
rehabilitation outline, related chapters)
wa.
Internal Aids (e.g., "Who, what, when, where & why?";
"Three-peat", "Bottom Line"or "One Thing at a
Time"etc.)
b.
External Aids (e.g., well designed memory log, outline strategies; alarm
watch; etc.)
w Task Analyses to Counter Fatigue
& Decreases in Organization & Energy (and memory, etc.) - breaking a chore or task
into single, logically sequenced steps and recording the steps in a Checklist
that allows checking off when completed, always makes the task easier
w
Assertiveness:
educating others; requesting accommodations (e.g., extra time, breaks, etc.);
expressing thoughts, desires
w
Set
incremental, step-wise goals, build self up for what can be accomplished
despite obstacles, and celebrate each tiny step of progress (Nurse it, don't
curse it; build yourself up instead of beating yourself up)
w
Adjust
Standards & Expectancies to Fit Limitations (make accurate comparisons vs
inaccurate ones to healthy others, premorbid self)
w
Set
Modest, Incremental Goals to Allow Control & Minimize Interference Caused
by Symptoms
w
Employ
Accurate Self-Expectancy, Self-Monitoring & Self-Evaluation and, finally
w
Appropriately
Self-Reinforce for Accompishment Despite Odds, Obstacles
w
Identify
& Engage in alternative activities that allow feeling worthwhile &
useful (including social activities & involvements)
w
Dispute
Myths:
1. "Why
me...? (vs "What contract did I sign that said this would never happen to
me?")
2. Grass
is always greener
3. Use
"5 Commandments of Rehab", "Caregiver Rules", "Rules
of Conflict", "Ideas to Help You Function" & Other Self-Help
Tools, for patient, family, staff
Concussion Care Centre of
Medical Psychology / Rehab Neuropsychology Service
Task Analysis (TA) Protocol
TA involves breaking any task, chore or
complex procedure into single, logically sequenced steps & recording the
steps in a Checklist. The list can be
checked off as completed. TA’s always
make task initiation, completion & follow through much easier. Performing a TA and generating a checklist
can greatly improve ability to perform tasks in persons with limitations in
memory, attention, energy, initiative, ability to sustain performance,
organization, etc.
Task Analysis Checklists are also
extremely useful in minimizing fatigue by reducing energy demands required by
memory, planning, organization, prioritizing and deciding the sequences for a
task. Task analyses are useful for both basic and complex behaviors. Once completed, task analyses allow
performance of tasks or routines without assistance from others. Most importantly, through repetition and
relearning, they re-establishing the
efficient routines that make up normal everyday human activity. When the procedures assisted by Task Analyses
are repeated consistently, they eventually become automatic [habits] and become
as automatic and effortless as tying a shoe.
The ingredients for rebuilding these
automatic habits are the 3 P’s: Plan,
Practice, Promotional Attitude. The result is rehabilitation, or replacing obstacles with efficient habits that
increase independence.
Several samples of different types of
activities (tasks, cleaning routines, daily schedules) follow:
TA Samples: Single
Tasks
Weekly Shopping Checklist
z MILK
z PAPER
PLATES/CUPS
z HAND LOTION
z CHEESE
z NAPKINS
z CHAP STICK
z BUTTER
z PAPER TOWELS
z SHAMPOO
z EGGS
z PLASTIC WRAP
z AFTER SHAVE
z FRUIT
z TRASH BAGS
‘Making A Bed’ Cheatlist
z1. Strip sheets,
blankets and pillow cases
z2. Put blankets and
pillows on table
z3. Take break
z4. Get sheets and
pillow cases from closet At
This time doing with Mom:
z5. Put on fitted
sheet
z6. Put on top sheet,
evening it out
z7. Put on blankets
and tuck in corners
z8. Put pillow cases
on pillow
z9. Put comforter on
bed
Vacuum Cleaning Task Analysis
1. Remove Cleaner and Parts From the Closet
_ canister _ handle
_floor brush _hand brush, _crevice
2. Unwind Power cord
3. Decide task
__ carpets
__ wood/vinyl floors
__ hand dusting
__ change dust bag
4. For Carpets
__ attach power
handle
__ adjust carpet
level on canister
__ turn on power
__ vacuum first in
main traffic paths and then to the sides
__ turn off power
5. For Hard Floors
__ attach long handle brush
__ turn on power
__ vacuum from the
center outward
__ turn off power
__ removee handle
__ clean brush head
with vacuum power
6. For Hand Dusting
__ attach brush head
to hand grip
__ turn on power
__ carefully dust
all surfaces
__ turn off power
__ remove brush and
clean it with vacuum handle
7. Change Dust Bag
__ when red light on
canister comes on, or check monthly
__ when bag supply
is low, purchase more at Sears. Bring code# to store.
__ open canister,
carefully pull bag off attachment.
__ place dirty bag
carefully into the trash
__ put new bag
following reverse procedure
8. After Cleaning
__ recoil power cord
into canister
__ store all parts
in the closet
TA Sample: Daily
Habits & Routines
AT's
Initiative/Energy Retrainer
MORNING
z Wash Face
z Shave
z Apply medication to
face if needed
z Brush Teeth
z Comb Hair
z Dress before
"morning" nap
z Check finger nails
& toe nails; trim when needed
z Check hair length
and get a haircut as needed
z Shower and wash hair
z Perform an
Activity/Chore (Choose from Menu)
z Check Schedule
(e.g., M,W,F=Y; Tues=RedX)
z Check your
appearance before leaving the house
AFTERNOON
z Fill Out Chart
(Behavioral Activity Monitor & Points)
z Eat Lunch
z PowerRelaxationNap
(PRN; Use Tape)
z Perform Activity or
Chore (Choose from Menu)
EVENING
z Eat Dinner
z PRN
(PowerRelaxationNap; Use Tape)
z Engage in Evening
Activity
z 10:00pm: Complete
Chart (Behavioral Activity Monitor & Tally Pts)
z Shower (if not done
in am; or, again?)
z Watch TV News
z Prep for Bed (PJ's,
Brush Teeth, etc.)
z BedTime
TA Samples: Cleaning
Routines
TB’s Bachelor Pad Cheat Sheet
‰
1. CLEAN APARTMENT:
A. KITCHEN:
z CLEAN COUNTERTOPS
DAILY
z SWEEP FLOOR DAILY
z ORGANIZE CABINETS
&WIPE OFF ICE BOX
z EVERY WEDS MOP FLOOR & WIPE WALLS
B. BEDROOM
z FOLD CLOTHES OR HANG
THEM UP AND STORE WHERE APPROPRIATE.DAILY
z SWEEP AND VACUMN
FLOORS WHEN APPROPRIATE OR PRN
z ORGANIZE COMPUTER
AREA
z EMPTY CAT BOX DAILY
z MOP FLOORS WHEN
APPROPRIATE PRN
C: DEN:
z SWEEP FLOOR
z VACUUM DAILY
z DUST DAILY
z STRAIGHTEN UP DAILY
z VACUUM UP
z MOP
D. LIVING ROOM
z DUST DAILY
z STRAIGHTEN UP DAILY
z SWEEP DAILY
z VACUUM ONCE A WEEK
z MOP ONCE A WEEK
z USE A CHECKLIST TO
ENSURE DOING ALL
‰
2) SET A CLEANING
SCHEDULE:
z A: DAILY DUTIES DUST,
SWEEP, STRAIGHTEN UP EACH ROOM
z B: EVERY WED MOP ALL
ROOMS AFTER A IS COMPLETE
Single Doctor
Chores CheatList
BATHROOM
z Dust around the
Mirror and Light and Window, including the tops of the light and mirrors and
window sills.
z Dust, with a damp
cloth, around the windowsills, on the front of the blinds and the back (reverse
sides by adjusting slats up and down), and along the tile division.
Tub and Toilet
z Wipe down the
bathtub walls, going to the ceiling.
z Use cleanser and a
brush to quickly wipe grime in the tub, and scum stains on the wall.
z Use soapy brush to
quickly wash and rinse the inside shower curtain.
z With a soapy
disinfectant, clean the toilet top, seat, behind the seat, and under the seat,
along the walls to the floor
z Fold all tiles
neatly on the tile racks
Floor
z Sweep the floor,
including behind the toilet.
z Take out the rug and
shake it off of the porch vigorously to remove dirt and dust.
z Remove and empty the
garbage can.
z Mop the floor, using
ammonia or Clorox and be sure to get behind the toilet.
z Use a rag to get the
floor behind the toilet. Be sure to get
in all the nooks and crannies along the edges of the floor, near the tub, etc.
LIVING ROOM
z Dust Furniture,
including all shelves
z Use broom/duster to
dust along all baseboards, window sills, ceiling molding & fireplace mantle
z Sweep and Vacuum
Under Rugs
z Sweep and Vacuum
Floors
z Vacuum the couch,
love seat, and chair
KITCHEN
z Empty Trash Can
z Clean Top of
Refrigerator and Microwave (Wet Soapy Cloth)
z Clean Inside
Refrigerator and Microwave
z Wash Any Dishes and
Clean Sink with Cleanser
z Clean Sink and
Surrounding Countertop
z Sweep, and then Mop
Floor
STUDY/OFFICE
...
DINING ROOM
...
BEDROOM
z Dust dresser tops,
around doors and windows, and along baseboard and ceiling molding
LAUNDRY
z 9:00am
Saturday: Take Clothes to Dry Cleaners
before 10:am
z 5:00pm Saturday:
Pick up clothes from Dry Cleaners and Arrange in closet
z 10:00am Sunday:
Launder socks, underwear, bathroom towels, bed sheets, etc.
z 11:00am Sunday: Use
Dryer & Fold & replace clothes when done. Hang Dry other clothes
z 11:20am Sunday:
Steam mist to refresh any pants, shirts in need
z Sunday 9:00pm: Fold, hang, put away dry clothes
TA Samples: Daily
Activity Trainers
DH's Daily Plan Checklist
MORNING
z Wake 6:00 AM to the
Alarm Clock
z Take Medication
z Make Bed
z Shower
z Get Dressed
z Comb Hair
z Make and eat breakfast
z Clear, rinse, stack
breakfast dishes (for pm wash)
z Wipe counter, table
stovetop if needed
z Feed animals
z Brush teeth
z Gather items to take
for the day
z Leave house at 7:00;
go to Grandma's
z Arrive between
7:30-8:00Am by van
z Follow Morning
Schedule (In Rehab SchedBook)
z Lunch at 11:30, Take
medication
z Follow Afternoon
schedule
z Leave for Grandma's
between 3:30-4:00
LATE AFTERNOON
z Dinner at Grandma's
& take medication
z Home between
6:00-7:00PM
z Get mail, read &
sort; put bills on microwave
EVENING: PREPARE
FOR THE NEXT DAY
Laundry if needed (clothes,
sheets,bath/kit towels)
z separate colors and
whites
z set water level
z put soap in
z put clothes in
z turn on
z put clothes in dryer
- set timer for 45min
z Listen for Buzzer -
fold when dry
z PUT CLOTHES AWAY:
Drawers/Closets
Kitchen
z wash dishes
z wipe off
countertops, stovetop;
z rinse out sink
z sweep floor; mop if
needed
z Change or empty cat
litter if needed
z Vacuum Carpet/Rugs
if needed
z Dust Furniture if
needed
Bathroom if needed
z clean sink, tub,
countertop
z put toilet cleaner
in toilet
z clean floor,
mirror
z wash toilet inside
and out
z change towels, mat,
washcloths
z Check off things
needed on list; write out list when going shopping -Keep list in kitchen drawer
z Pick & lay out
clothes to wear for the next day
Relax/Free Time
Prepare for Bed
z Floss/Brush
Teeth
z Wash Face
z Shave
z Put away clothes (in
hamper or drawer/closet)
z Set Alarm for 6:00AM
DG's Daily Checklist
MORNING
_____WAKE 5:30 AM TO
THE ALARM CLOCK
_____ TAKE A
SHOWER-Wash and condition hair
_____ SHAVE
_____ PUT
_____ COMB HAIR
_____ PUT DEODORANT
ON
_____ BRUSH TEETH
_____ GET DRESSED
_____ MAKE BED
_____ AT 6:00 AM
TAKE MEDICATION
_____ MAKE AND EAT
BREAKFAST
_____ CLEAR, RINSE,
STACK BREAKFAST DISHES TO PREPARE FOR PM WASHING
_____ WIPE COUNTER, TABLE, STOVE TOP IF NEEDED
_____ BRUSH TEETH
_____ GATHER ITEMS
TO TAKE FOR DAY - including medication
_____ AT 7:00 AM
LEAVE HOUSE &GO TO
_____ LOCK DOOR
_____ ARRIVE 8:00-8:30 AM BY THE VAN
_____ FOLLOW MORNING
SCHEDULE
_____ LUNCH AT
11:30, TAKE MEDICATION
_____ FOLLOW
AFTERNOON SCHEDULE
_____ LEAVE BETWEEN
3:30-4:00 PM TO GO TO THE PICK-UP POINT
LATE AFTERNOON
_____ TAKE
MEDICATION AT 6:00 PM
_____ GET MAIL, READ
& SORT, PUT BILLS IN APPT BOOK TO GIVE TO MY SEC.
_____ BUSINESS RELATED ACTIVITIES
_____ CHECK FOR
MESSAGES
_____ RETURN CALLS
_____ MAKE DINNER
EVENING: PREPARE
FOR THE NEXT DAY
_____KITCHEN
_____ wash
dishes
_____ wipe off
countertops, stovetop
_____ rinse out
sink
_____ sweep floor,
mop if needed
_____ CHANGE /EMPTY
TRASH CAN - If Needed
_____ LAUNDRY IF NEEDED (CLOTHES,
SHEETS BATHROOM& KITCHEN TOWELS)
_____ separate colors and whites
_____ set water level _____ put soap in
_____ put clothes in _____ turn on
_____ put clothes in dryer
_____ fold when dry
_____ PUT AWAY CLOTHES: DRAWERS/ CLOSET
_____ VACUUM
CARPET/RUGS IF NEEDED
_____ DUST FURNITURE
IF NEEDED
______BATHROOM IF NEEDED
_____ clean sink,
tub, countertop
_____ put toilet
cleaner in toilet
_____ clean
floor
_____ wash toilet
inside and out
_____ change towels,
mat, washcloths
_____ WATER PLANTS
ON FRIDAY IF SOIL DRY
_____ CHECK OFF
THINGS NEEDED ON LISTS, WRITE OUT LIST WHEN GOING SHOPPING -
KEEP LIST ON KITCHEN COUNTER
_____ PICK AND LAY
OUT CLOTHES TO WEAR FOR NEXT DAY
_____ GATHER AND
ORGANIZE ITEMS TO BRING FOR NEXT DAY
RELAX/FREE TIME
PREPARE FOR BED
_____ BRUSH TEETH
_____ WASH FACE
_____ SHAVE
_____ PUT AWAY
CLOTHES (in hamper or drawer)
_____ PUT ON SWEATS
_____ SET ALARM FOR
5:30 AM
L's Automatic Habit Retrainer
MORNING
z
Get up When Awakened
z
Take Morning
Medications, with Water
z
Go to Bathroom
z Wash Face
z
Go to Kitchen
z Drink Coffee and
z Eat Breakfast
z
Go back to Bathroom
and Brush Teeth
z
Go to Bedroom and
z Remove Nightie
z Put on Panties & Bra
z Look on Bed and Put on Clothes that have
Been Laid out
z __Put Top on __Put Bottom on _Put Socks on __Put Shoes on
z Get Hairbrush and Brush Hair (with help)
z
Finish any Remaining
Milk or Coffee
z
Get Memory Book
z Check for Pen - get one from kitchen
table if needed
z
Go To DayCenter
z Take Memory Logbook and Pen
z Go out Front Door and Go To Car
z Open Car Passenger Door
z Get in Car
z Shut Car Door
z Leave for DayCenter
z
Arrive at DayCenter
z Go to Activity Board
z See Daily Scheduled Events
z Participate in Activities
z Write down in log book each activity
LUNCHTIME
z Eat Lunch at Lunchtime
z Take Medication with Lunch
z Participate in Afternoon Activities
z Write down in log book each activity
z
Leave DayCenter to
Return Home
EVENING
z
Listen to Music
Tapes
z Go to Mom's Bedroom and Get Music Tapes from
Table
z Return to Rec Room
z Choose and Play a Tape
z When Finished Return Tapes to Mom's Bedroom Table
z
Dinner Time
z ___Go To Kitchen ___ Eat Dinner
z
Work on Memory Book
and Complete for Day
BEDTIME
z
Get Nightie From Bed
z
Go To Bathroom
z
Shower
z
Take Clothes Off
z ___Turn Water On ___Get in Shower
z Pick up Soap
z Put Soap on Scrubber
z Wash Self with Scrubber
z Wash Soap Off
z Wet Hair Thoroughly
z Put Shampoo On
z Make Sure There is Plenty of Shampoo
z Shampoo Hair Thoroughly
z Rise Hair Thoroughly
z Shut Water Off
z ___Get Towel ___Dry Off
z Get out of Shower
z Put on Nightie
z Put on Face Lotion and Rinse
z Brush Teeth
z
Go To Bedroom
z Get HairDryer from Bed
z Plug in and Turn on
z Take Evening Medication
z Floss Teeth
z Set Alarm Clock for 7:30
z
Go To Bed
Kevin's Daily Task Initiatives
MORNING
z 6:00am - Rise to
Alarm
z Go To Bathroom -
Toilet and
z Prepare Breakfast
z 6:30am - Eat
z Put Dishes in Sink
and Clean Counter
z 7:00am - Dress
z Brush Teeth
z Brush Hair
z Pack Book bag -
Lunch Tickets, Keys, Schedule
z 8:00am, Get Ready to
Catch Bus
CIVITAN
z
8:30 - Bathroom -
Toilet,
z 9:00 - Check
Productivity
z 10:30 - Check
Productivity
z 12:00 - Bathroom -
Toilet,
z 12:30 - Eat Lunch
z 1:00 - Clean Up
z 2:00 - Bathroom - Toilet,
z 2:30 - Break
z 3:00 - Check
Productivity
z 4:00 - Get Ready for
Bus
EVENING
z 4:30 - Bathroom -
Toilet,
z 4:45 - Prepare
Dinner
z 5:00 - Eat Dinner
z 5:30 - Clean Table
z Prepare Lunch for
Next Day
z Clean Dishes in Sink
z Clean Counter
z Bathroom - Shower
and Clean Tub
z Dress
z Pick up Bedroom -
Put Clean Clothes in Drawer/ Dirty Clothes in Basket
z Make Bed
z Free Time
z 9:30 - Prepare for
Bed - Toilet,
z 10:00 - In Bed -
Sleep
Kevin's Special
Duties
Automatic Habit/Energy/Initiative
Retrainer
ONCE PER WEEK:
DAY/Time:__________________________
z Change Bed
z Vacuum Floor
z Dust
z Wash Kitchen Floor
z Wash Bathroom Floor
z Scrub
z Scrub Bathroom Sink
z Scrub Kitchen Sink
THREE WASH LOADS PER
WEEK
DAYS/Time: ________________________
z Gather Clothes
z Take to Basement
z Sort Clothes
z Load Washer and
Start
z Load Dryer
z Fold Clothes (with
help)
z Take Clothes
Upstairs (with help)
z Put Clothes in
Drawer (with help)
Strategies for Energy Conservation*
When considering
ways to conserve energy, remember to prioritize, delegate, pace yourself, and
plan high-energy activities at times of peak energy.
Activities of Daily Living
Organize time to avoid rushing
Housekeeping
Shopping
Meal Preparation
Child Care
Workplace
Leisure
Adapted from: Donovan, E. (1995). Energy
conservation." In Fatigue Initiative through Research and Education (FIRE®). Educational program sponsored by Oncology
Nursing Society and Ortho Biotech Inc.,